Sunday, March 24, 2013

That's it

Because of Addy's liver disease, her body isn't able to feet rid of some of the things it needs to. One of those is ammonia. The others are things that the doctors can't measure. The doctors had been doing everything they could to control Addy's ammonia levels but her body kept producing more. This among the other things they can't measure, caused her brain to swell. Yesterday the doctors did an MRI on her brain and found no blood flow. This means there is a possibility of her being brain dead. The doctor told us that she is almost certain this is the case. Per hospital protocol she needs to be put on and EEG again, have two neurological exams and other tests ran. However, the neuro doctors will not come exam her if her ammonia is high because it will not be a valid test. Today we were given the option of continuing treatment as we have been but little to no hope of it doing anything, waiting on the neuro exam or halting all care. Our first question was how we could donate her organs.

We met with the organ retrieval person and she had put Addy's organs out locally. Because the doctors were not able to diagnose Addy, no one was interested because there is a chance that whatever she has can be transferred to the recipient. This actually happened to us a while ago. A liver became available but there was a chance another disease could come along with it so the doctors denied it. Now her organs are being put on the national list to see if anything is interested. This takes several hours and if someone is interested, Addy has to be declared brain dead by the hospital. That puts us at waiting around 24 hours for all the necessary tests.

Today Addy was baptized with her family around her. Thank you Pastor Dairel and Cindy for coming on such short notice.

We want to thank everyone who has supported is in any way during all this. We always knew Addy was a special girl and we know that God just misses her and wants her back.

15 comments:

  1. Our hearts are breaking for you and Pat, and for Addy's grandparents and all her aunts and uncles. May God wrap his arms around you and give you the peace the passeth all understanding.

    We Love You All
    Aunt Carol, Aunt Linda and Uncle Eric

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  2. All our love and prayers to Pat and Steph...
    God Bless our Lil Angel Addy Anne

    Ron, Sharon, and Cassie Kaufman

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  3. HUGS and PRAYERS for PEACE during this unimaginable time. May the Holy Spirit engulf each and every one of you giving you comfort and rest. Know you are loved! God Bless you all!

    Heather and Ryan LePage

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  4. Prayers go to the Snyder family. Hearts go to you guys! She's the cutest little thing and she will be missed.

    Makenzie Cox

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  5. Everyone is in our thoughts and prayers during this difficult time. We are here for anything you need. Addy was a special person and has affected many peoples lives. She was and always will be lived by all.
    Love to all,
    Todd, Cristyn, & Coral

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  6. Please know you are surrounded by supportive thoughts and wishes for strength and peace...today and in all the days to come. May God bless you and keep you and the angels take care of Addy.

    Cindy and George Hemming

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  7. We are praying for the whole family-that God guides you through the days ahead. Addy was a very special little girl, with a beautiful smile! She brought smiles to everyone who came in contact with her. God Bless you all!

    Tim & Pam
    Jeff & Kacy

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  8. There are just no words for this Stephanie and Pat. But God gave us the ability to love, and hug, and pray, and we offer you all of that. Our family thinks the world of you.
    Tony, Amanda, Maddy, Sophie and Lucas

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  9. Our hearts are breaking for all of you. We are asking that angels hold Addy and her loved ones in their hands. We send love, prayers and hopes for peace and comfort. Words are inadequate.
    Susan and Grandma Emily

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  10. Thoughts and prayers are with the whole family, she was a beautiful baby girl and now a beautiful angel
    Courtney, Eddie, Ed and Betty Dunfee

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  11. our thoughts and prayers go out to you and your family. There are no words that can help your pain. God has receive a precious beautiful angel.

    Katie Thomas and Heidi McPeak

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  12. Thinking of you and Pat today. You are in our thoughts. Heaven needed one more angel. The Trouts

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  13. We are so very sorry to hear this news and were definitely hoping for a much better outcome. Our prayers are with you for strength and peace. Hugs to all of you, including precious Addy.

    Cherisse, Matt and Auntie

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  14. May you all rest in the peace of knowing she was loved, she was happy and she was a blessing to everyone she met while she was here. Our prayers are with you all.

    Aaron, Sharla, Justinn & Emily Cochran

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  15. So very very sorry for your loss. May part of her help save another young innocent life. Addy was an absolutely gorgeous lil girl and I am sure has touched the lives of many. Your family will be in my thoughts and prayers. Heaven definitely received a beautiful angel

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