Saturday Afternoon Update

On Wednesday Addy had to have another blood transfusion. Her hemoglobin was low again and she was acting pretty lethargic. The doctors thought it was because they had been taking so much blood from her to run tests. They decided that instead of taking blood everyday, they would back off and only check her ammonia every other day and quit checking her glucose. Both have been staying steady so they felt safe not checking as often. After the transfusion, she started acting more like herself and was back to smiling and playing.

Yesterday as the IV team was changing her PICC line dressing the line got pulled out a little bit. They took her back down and instead of pulling it completely back out, they just replaced it. She didn't bleed as bad this time so now she doesn't have to have her arm board on.

As far as the live donor goes, they are in the second step and are now checking the tissue type. We aren't sure how long that takes but they took a blood sample on Thursday from Addy.

Addy now has some clothes she can wear! Stephanie's mom took some onesies and put ribbon up the side so that Addy can wear them with her PICC line. Addy doesn't mind being naked, she actually loves it, but we have started taking her on more walks through the hospital, so she should probably have some clothes on!

We also got a pretty special package in the mail. Our friend Barb got an AddySTRONG onesie made and put it on a teddy bear for Addy. She really liked it!

We continue to get cards and have had to move to another wall to display them all. When a new nurse comes into our room that is almost always the first thing that they comment on. Thank you to everyone who has sent one. While Addy may not understand, Pat and I enjoy getting them everyday.

Other than that there is nothing to report. We are still just waiting!