Tuesday

Not whole lot of new information to present today. The D10 fluid overnight helped stabilize Addy's glucose so that is good. We are also allowed to give her baby food again. Starting tomorrow, they are going to decrease the medicine she was put on for the fluid in her belly because her stomach is back down to her normal size and it isn't hard anymore.

Addy has the nursing staff wrapped around her finger! Last night she didn't really want to sleep so the nurse asked Pat if she could take her for a walk. She ended up spending quite a bit of time at the nurses' station. Then today when Pat and I went to get lunch Addy was crying so our nurse took her out to show to everyone. The nurse told us she just watched everyone and was very interested in what everyone had. She is quite curious!

We also took Addy down to the playroom today so she could get out of the room a little bit. It is nice because every wing has a playroom for the kids. We didn't stay for too awful long because she got tired and was ready for her afternoon nap, but it was nice to get her out of the room for a little while.

When we came back from lunch, the transplant surgeons were in the room. There are quite a few here at the hospital and the doctor on call we had never met so he came to talk to us. He told us a lot of what we already knew, he can't predict when a liver will become available, Addy is high on the list, and it is very frustrating to wait. He did talk to us about a domino transplant (Here is an article about the first one they did). For a Cliff Notes version, what they would do is someone with the disease called Maple Syrup Urine Disease (MSUD) would get a new liver and then Addy would receive the MSUD liver. The MSUD would not get transferred to Addy.

The infectious disease doctor was just in as well and he says there is no reason, that he can tell, that she can't get the transplant. The reason he had to come was because of her rhinovirus. With the transplant and the anti-rejection medication, Addy's immune system will be very low after the surgery. If she were to have the transplant and have a virus, that could cause extra complications. However now that the rhinovirus is gone, he thinks it should be ok.

Thank you so much for all the thoughts, prayers and support! We can't believe how many of you are reading the blog and we are glad that we can keep you all informed. Please keep the prayers coming and hopefully we will get good news soon!