We just met with the GI doctors this morning. Dr. Schieder (hepatology doctor) doesn't feel safe sending Addy home with such a high INR. Her number has gone down a little-to7.6- but that is still not good.
Today she will need to get a blood transfusion because they have taken so much blood for all of her tests. She is going to get 10/ kilo over 4 hours. After tomorrow morning, they won't draw blood everyday. They also agreed to not do as many glucose tests since her numbers have been pretty steady.
She is almost completely off the IV fluids. She is only getting 5 cc's an hour and that is just to keep the PICC line open since she is getting medicine every 6 hours. The doctor thought we could decrease her Albumin since her numbers are getting better. That means she will get that medicine every 12 hours rather than every 6.
In other news, Pat and I visited the library yesterday. It was a pretty nice library and had movies as well. The set up in this room makes it a little hard for parents to watch TV do we got a movie to watch on the computer. I had already started Jodi Picoult's Between the Lines so I didn't get a new book, but found plenty I will check out if we are here longer. Pat decided to start the Hunger Game series. Bob and Denise (Pat's parents) came to visit but Denise wasn't able to come back and see Addy since she is still getting over a sinus infection. The doctors don't want anyone with cold like symptoms around Addy right now. Darcy and Chad also came and visited for a little bit.
* UPDATE * Our nurse just came in and said Addy's respiratory panel came back and it was negative so that means no more rhinovirus and we can take her to the playroom so she can move around a little bit!
With her INR so high, it would seem unlikely that her PICC line would clot. Maybe better to keep the fluid rather than lose the line. Hope fully her being able to eat will keep her happy and the glucose more stable. glad you have been able to find distractions.
ReplyDeleteA.L.