The GI doctors came in today and said that Addy's bilirubin has gone up and is now at 29. Her INR is staying steady and is at 7.5 but that is still very high. Her blood sugar is also dropping overnight even when we are feeding her every three hours, so tonight they will give her D 10 through her IV to help that. They scored her again on UNOS and her score is up to 54. Our transplant coordinator said that is very high and the phone should ring soon with a donor. However because there are no gurantees, they suggested we start seeing if anyone is interested in being a live donor. We realize that we have a lot of people willing to donate but we hate to ask anyone to go through it. In others minds, it may not seem like a big favor, but to us it is. We appreciate all of the offers but we are having a hard time with it. Everyone has other people depending on them and we don't want to compromise that or take them away from their families. We hope everyone understands that. Our transplant coordinator has given us the number for the live donor coordinator for people to call and get the process underway. It would start with a blood draw to make sure the blood type matches. Addy is O, so either O+ or O- will work, or if you have A there is something called A2 (what they tested Pat and I for) that will also work. If the blood type matches, the next thing would be a 2 1/2 - 3 day evaluation and more testing here in Pittsburgh. Another stipulation is the donor cannot be over 55 years old.
On top of all this as well Pat woke up this morning with extreme back pain. Two weeks ago he had this as well and we went to the emergency room and found he had a kidney stone. He never thought he passed it but the pain subsided so he thought maybe it had gotten small enough, he didn't realize it was passed. That wasn't the case. After getting sick from the pain, he drove himself to the hospital where they confirmed he still had the kidney stone. They pumped him full of IV fluids until it was in his bladder. They sent him back with pain medicine and hopefully it will pass and he will feel better.
Hey Steph! My mom has been keeping me in the loop about Addy's progress. I am glad you posted some info about live donors because I have been wondering if that is a path you were looking at. I am O neg and I would love to get tested to see if there is a chance I would be a match. Please let me know how I can help or get the process Started if that it something you would be comfortable with. Speak with you soon. Chelsey
ReplyDeleteStay strong. You guys can do this.
ReplyDeleteA.L.