Not really up, just down the hall. On Saturday Pat was taking Addy down the hallway to look out the windows when he noticed an open room. He asked our nurse what it would take to get a room with a better view, just joking. Before we knew it, the nurse had asked her supervisor and we were moving our stuff. We now look out over the city instead of at the other side of the hospital and we can see the TV from the couch!
The new address for the hospital is
Addresses
We have had quite a few people ask us about sending cards and such, so here is the email to send an e-card
http://www.chp.edu/CHP/ecards
The address for the hospital is
Addy Snyder
Room 824, Unit 8 B
Children's Hospitals of Pittsburgh of UPMC
one Children's Hospital Drive
4401 Penn Avenue
Pittsburgh, PA 15224
The only thing that has changed is our room is now 833.
That's all the news for now!
Monday, March 18, 2013
Saturday, March 16, 2013
Saturday Afternoon Update
On Wednesday Addy had to have another blood transfusion. Her hemoglobin was low again and she was acting pretty lethargic. The doctors thought it was because they had been taking so much blood from her to run tests. They decided that instead of taking blood everyday, they would back off and only check her ammonia every other day and quit checking her glucose. Both have been staying steady so they felt safe not checking as often. After the transfusion, she started acting more like herself and was back to smiling and playing.
Yesterday as the IV team was changing her PICC line dressing the line got pulled out a little bit. They took her back down and instead of pulling it completely back out, they just replaced it. She didn't bleed as bad this time so now she doesn't have to have her arm board on.
As far as the live donor goes, they are in the second step and are now checking the tissue type. We aren't sure how long that takes but they took a blood sample on Thursday from Addy.
Addy now has some clothes she can wear! Stephanie's mom took some onesies and put ribbon up the side so that Addy can wear them with her PICC line. Addy doesn't mind being naked, she actually loves it, but we have started taking her on more walks through the hospital, so she should probably have some clothes on!
We also got a pretty special package in the mail. Our friend Barb got an AddySTRONG onesie made and put it on a teddy bear for Addy. She really liked it!
We continue to get cards and have had to move to another wall to display them all. When a new nurse comes into our room that is almost always the first thing that they comment on. Thank you to everyone who has sent one. While Addy may not understand, Pat and I enjoy getting them everyday.
Other than that there is nothing to report. We are still just waiting!
Yesterday as the IV team was changing her PICC line dressing the line got pulled out a little bit. They took her back down and instead of pulling it completely back out, they just replaced it. She didn't bleed as bad this time so now she doesn't have to have her arm board on.
As far as the live donor goes, they are in the second step and are now checking the tissue type. We aren't sure how long that takes but they took a blood sample on Thursday from Addy.
Addy now has some clothes she can wear! Stephanie's mom took some onesies and put ribbon up the side so that Addy can wear them with her PICC line. Addy doesn't mind being naked, she actually loves it, but we have started taking her on more walks through the hospital, so she should probably have some clothes on!
We also got a pretty special package in the mail. Our friend Barb got an AddySTRONG onesie made and put it on a teddy bear for Addy. She really liked it!
We continue to get cards and have had to move to another wall to display them all. When a new nurse comes into our room that is almost always the first thing that they comment on. Thank you to everyone who has sent one. While Addy may not understand, Pat and I enjoy getting them everyday.
Other than that there is nothing to report. We are still just waiting!
Monday, March 11, 2013
Still waiting
Once again there isn't a whole lot to update. The doctors got a little concerned over the weekend that Addy's ammonia levels were climbing again but the past two days the number has come back down so that seems to be under control. Other than that we are still just waiting on a liver. We have had quite a few people ask for the number for the live donor coordinator so we wanted to put it on here if anyone was interested 412-647-5512. They are looking for someone smaller so that the liver will be a better fit but they are taking everyone's information and then sifting back through to test people.
In other news, we had some visitors this weekend. Brian, Andrea and Jenna came to see us Saturday and then a little on Sunday before they headed back to Lima. Stephanie's parents also came over on Sunday. We were able to take Addy outside both days so she could enjoy the sunlight a little. I think she is starting to get as antsy as we are about being stuck in the room all day. We have started going on walks around the hospital, but we are going to have to bring her stroller in or get a wagon because she is getting heavy! She also has at least 6 teeth coming in so she hasn't been the happiest thing. It is always stressful because we aren't sure if she is fussy/not feeling good because of her teeth, her liver or something else.
Pat and I have been reading the Duck Commander book that Willie Robertson and his wife wrote about how the company came to be. Many times throughout the book it is mentioned how God always has the best timing whether we think it is or not. Pat and I have said that a lot of times over the past few months and when one of us starts to question it, it is nice to have the other to remind us.
I think that is all to tell for now! Enjoy the pictures!
In other news, we had some visitors this weekend. Brian, Andrea and Jenna came to see us Saturday and then a little on Sunday before they headed back to Lima. Stephanie's parents also came over on Sunday. We were able to take Addy outside both days so she could enjoy the sunlight a little. I think she is starting to get as antsy as we are about being stuck in the room all day. We have started going on walks around the hospital, but we are going to have to bring her stroller in or get a wagon because she is getting heavy! She also has at least 6 teeth coming in so she hasn't been the happiest thing. It is always stressful because we aren't sure if she is fussy/not feeling good because of her teeth, her liver or something else.
Pat and I have been reading the Duck Commander book that Willie Robertson and his wife wrote about how the company came to be. Many times throughout the book it is mentioned how God always has the best timing whether we think it is or not. Pat and I have said that a lot of times over the past few months and when one of us starts to question it, it is nice to have the other to remind us.
I think that is all to tell for now! Enjoy the pictures!
Wednesday, March 6, 2013
How Can We Help?
That is something Pat and I have heard a lot over the past few months and we have never been able to really answer with anything but prayers. Thanks to our amazing family and friends there are now two benefit dinners going to be held in Addy's honor. We wanted to share the details with everyone in case anyone was interested.
March 16th Walhonding Valley Fire Station, 5:00
The WVFD firefighters soup supper will be in support of Addy Snyder, Daughter of Firefighter Pat Snyder and Teacher Stephanie Lapp Snyder. Addy is in the Hospital requiring a Liver transplant. We would like to ask for your support for one of our WVFD family members. The soup supper is donation based and all money will go to help the Snyder family. Bingo to follow the supper! If you have any questions, please call 740-824-3100!
March 22, River View High School
The AddySTRONG Benefit will be held at RVHS on March 22nd from 5-8. We will be serving spaghetti, salad, bread, and dessert. Cost is $10. Children ages 5-10 are $5 and children under 5 are free. We will be pre selling tickets. We will also have a Chinese raffle and 50/50 drawing. Contact Sharon Wachtel at ftwach@roadrunner.com if you would like to order tickets.
There are also still AddySTRONG shirts for sale until Friday.
Thank you again for everyone's love and support. Our nurses keep making fun that Addy has her own wallpaper with all of the cards that have been sent to her
In Addy news, nothing has changed, other then she is now 8 months old! After her blood transfusion yesterday, she was much perkier and acting more like herself. Other than that we are still just waiting!
March 16th Walhonding Valley Fire Station, 5:00
The WVFD firefighters soup supper will be in support of Addy Snyder, Daughter of Firefighter Pat Snyder and Teacher Stephanie Lapp Snyder. Addy is in the Hospital requiring a Liver transplant. We would like to ask for your support for one of our WVFD family members. The soup supper is donation based and all money will go to help the Snyder family. Bingo to follow the supper! If you have any questions, please call 740-824-3100!
March 22, River View High School
The AddySTRONG Benefit will be held at RVHS on March 22nd from 5-8. We will be serving spaghetti, salad, bread, and dessert. Cost is $10. Children ages 5-10 are $5 and children under 5 are free. We will be pre selling tickets. We will also have a Chinese raffle and 50/50 drawing. Contact Sharon Wachtel at ftwach@roadrunner.com if you would like to order tickets.
There are also still AddySTRONG shirts for sale until Friday.
Thank you again for everyone's love and support. Our nurses keep making fun that Addy has her own wallpaper with all of the cards that have been sent to her
In Addy news, nothing has changed, other then she is now 8 months old! After her blood transfusion yesterday, she was much perkier and acting more like herself. Other than that we are still just waiting!
Tuesday, March 5, 2013
Keeping Everyone Updated
Not a whole lot to update again today. Addy had to get a blood transfusion today because her hemoglobin was so low from all of the lab draws. It was over a 4 hour period so she got it pretty slow. The nice thing is that she gets it through her PICC line so we can still hold her and move her around. She enjoys sitting on the couch with us and just hanging out.
Pat and I have been able to be somewhat productive while we have been here. I have read The City of Bones and watched the first two episodes of The Amazing Race that I missed. Plus I have beaten all the puzzles on What's the Word. I have also gotten some of my Master's work done so that I can try to stay ahead. Pat has read almost all of The Hunger Games and started reading Willie Robertson's book. We also watched Mr. Popper's Penguins. Something else we discovered is that our floor has a Wii on wheels. You can take the console to your room and play games so that is what we did last night.
Pat and I have been able to be somewhat productive while we have been here. I have read The City of Bones and watched the first two episodes of The Amazing Race that I missed. Plus I have beaten all the puzzles on What's the Word. I have also gotten some of my Master's work done so that I can try to stay ahead. Pat has read almost all of The Hunger Games and started reading Willie Robertson's book. We also watched Mr. Popper's Penguins. Something else we discovered is that our floor has a Wii on wheels. You can take the console to your room and play games so that is what we did last night.
Pat and Addy taking a nap today
Playtime!
Addy's new trick! The rails now have to go all the way up on her bed when we aren't right there.
Saturday, March 2, 2013
Addresses
We have had quite a few people ask us about sending cards and such, so here is the email to send an e-card
http://www.chp.edu/CHP/ecards
The address for the hospital is
Addy Snyder
Room 824, Unit 8 B
Children's Hospitals of Pittsburgh of UPMC
one Children's Hospital Drive
4401 Penn Avenue
Pittsburgh, PA 15224
http://www.chp.edu/CHP/ecards
The address for the hospital is
Addy Snyder
Room 824, Unit 8 B
Children's Hospitals of Pittsburgh of UPMC
one Children's Hospital Drive
4401 Penn Avenue
Pittsburgh, PA 15224
Weekend Update
Not a whole lot to report today. Yesterday her ammonia levels were up so that was a little concerning, but after giving her a dose of Lactelose (a medicine she was already on) and re-running the lab, it was back to normal. The doctors told us that it is a very picky lab so it could have just been how it was ran or the amount of time it took to run the lab.
Addy is still happy and playing. For some reason she has decided sleeping at night is no longer necessary. Yesterday we tried to keep her up for most of the day but she still fought the sleep at night. She will sleep in our arms but as soon as we go to put her in her bed, she is back awake. I am guessing she is missing home just as much as we are.
Other than that we are still just waiting for a phone call!
Addy is still happy and playing. For some reason she has decided sleeping at night is no longer necessary. Yesterday we tried to keep her up for most of the day but she still fought the sleep at night. She will sleep in our arms but as soon as we go to put her in her bed, she is back awake. I am guessing she is missing home just as much as we are.
Other than that we are still just waiting for a phone call!
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